This little girl was born with a rare syndrome that causes her head to swell and that fills her brain with excess fluid. She underwent more than 50 surgeries, but despite her difficult condition, she still has a love for life.
Life is not all about joy and happiness. There is a great amount of suffering in this world. Some people seem to have less suffering in their lives and others seem to have more, but nobody can escape it entirely. That is the experience of human life. And while some people would like suffering not to exist, some consider our troubles to have a meaning and purpose if we try and take a positive lesson from them.
Little Lydia Rankin is an example of a life filled with suffering from the very beginning. At the 20-week ultrasound, doctors told Lydia’s parents, Ruth and Paul Rankin, that their baby wouldn’t survive the birth, and if she did, she would live a few weeks at most.
As it turned out, the doctors were wrong, and Lydia came into this world in May 2011. Unfortunately, she was suffering from a disease called alobar holoprosencephaly, which means that the two front lobes in the brain didn’t separate during development.
Moreover, she also has a condition called hydrocephalus, which causes her brain to fill with cerebrospinal fluid. Lydia was born with a head weighing 11 pounds (approx. 5 kg).
Today Lydia had her fitting for a new seat,both me and Paul Rankin got tears of joy when we saw Lydia in it,she was giggling and chattering away in Lydia's language xx
During the first four years of her life, Lydia had to undergo 40 operations. But despite doctors’ predictions about Lydia’s life expectancy, she kept defying all odds.
“It has been a rollercoaster. We’ve been told three times in her life she was going to die but she’s a strong ox. She inspires all of us and her strength keeps us alive. She is our miracle. Paul is my rock and we are just living each day as it comes. From day one he said, ‘Ruth, I just know she is going to be with us for a long time,’” Lydia’s mom, Ruth, said in 2015, according to the Mirror.
The process of taking care of Lydia is not easy for her parents.
“Since she was born, we’ve been constantly in and out of hospital with stays of two or three weeks every time she’s had an operation. With each operation, it doesn’t get easier. The anticipation is agonizing. As a mother I can’t begin to tell you what it’s like,” said Ruth.
Lydia today laughing hysterically at Max barking xx
由 Ruth Rankin 发布于 2013年2月15日周五
But despite the amount of suffering Lydia experiences, she still has a love of life and gives her parents so much joy.
“We are strong and Lydia loves life. She smiles all day long. She’s amazing,” said Ruth.
As a young girl, she likes animated movies, and her favorite ones are Frozen and Tangled.
Living with a child with such a difficult condition is certainly challenging, but Ruth and Paul love Lydia so very much.
“Watching your child suffer is a parent’s worst nightmare. Every day Paul and I wake up with Lydia we think, ‘Yes!’ We might not get her to five years old, we might not get her to six, but we live for now and take each day as it comes,” said Ruth.
So Lydia is going to be 7 in may….. She as you all know has been through a lot,she has had over 50 operations, she has…
By the grace of God, Lydia has lived past 5, 6 years old. Now, at 7 years old, she has survived over 50 operations, defying the odds again and again!
“So Lydia is going to be 7 in may….. She as you all know has been through a lot,she has had over 50 operations, she has been on the brink of death on occasions, where at least 6 times doctors have pulled the curtains round and told us this is the end of the road for Lydia!!!!!!” Ruth wrote.
“Man has no say over Lydia’s life and she has proved that time and time again.. It’s not up to man to take away GOD WILL CALL HER WHEN HE IS READY ….,” Ruth continued.
“We will always fight for our children they have been given to us for a reason… it’s our job to do our best for them we have to keep fighting so we can say we gave them the best life possible.”