It’s happened to all of us at point: bed head. You wake up in the morning or from an afternoon nap and your hair is going every which way. It seems like an impossible feat to tame it, though eventually you get it under control.
For some people, however, the bed head look never goes away and it’s due to an extremely rare condition, uncombable hair syndrome (UHS).
Shilah Calvert-Yin, one of about 100 people in the world believed to suffer from UHS, is at that age where kids start to tease each other about how they look. Seven-year-old Shilah has been compared to Albert Einstein and Doc Brown from “Back to the Future,” but the comments about her wild hair don’t seem to bother her.
“It’s not ordinary and it’s not boring like everyone else’s,” Shilah said of her hair.
Shilah’s mother first noticed something was different when her daughter was three months old.
When Shilah was only a few months old her blonde hair grew in fuzzy and it only seemed to get worse as she got older. For years Shilah’s mother, Celeste, didn’t have a clue what was wrong with her daughter’s hair until a doctor recently informed her about UHS.
The condition is said to only impact about 100 people in the world, though when children reach puberty they tend to grow out of UHS.
Caroline Ruggiero, a trichologist and president of Truly You Hair & Scalp Clinic in Ontario, Canada, told Global News that UHS is an inherited disorder involving the abnormality of the hair shaft. When compared to normal hair—this condition can affect any hair type—UHS takes on a more triangular shape rather than a round or oval shape, like straight or curly hair.
Despite her unique and attention-grabbing hair Shilah embraces her crazy mane.
Celeste has said that she finds herself explaining her daughter’s hair to almost everyone they come across, and many people think it’s a joke. Some people even take photos of Shilah’s hair or touch it. Luckily the seven-year-old just seems to go with the flow.
“Shilah is used to all the attention and has begun to manipulate and work situations in her favor,” Celeste said.
According to her mother, the little girl plans to take on modeling and judging by her spunky hair and her positive, upbeat attitude she’ll be able to pull it off.
In the meantime her mother set up an Instagram account for her daughter to show off her child’s crazy hair. You can view more photos of Shilah’s hair here.
“Everyone knows me and remembers me … I think my friends wish they had hair like mine,” Shilah said.