An estimated 61,000 people died from dementia, which is 11,000 more than usual.
1. Social Isolation
Social distancing—or staying at least six feet apart, wearing a mask, and avoiding crowds—is a proven way to decrease COVID-19 risk, especially from people with the infection but without symptoms. But social distancing is different from social isolation, which leads to a sense of disconnection from the community. Social isolation, which essentially is little or no contact with others, is the last thing seniors with dementia need. But it’s what many have received, as caregivers are forced to limit visits during the pandemic.2. Caregiver Burnout
On the best of days, caregiving for a family member with dementia is difficult. Watching the decline of a loved one is hard. Having to help them with things that are basic and personal makes it even harder. The commitment, 24 hours a day, offers little time for breaks. Often the caregiver, unsung and overlooked, is suffering.3. Less Access to Medical Care
Throughout the United States, hospitals and clinics have seen fewer people coming in. Many missed visits were for preventive care and treatment of chronic conditions. For dementia patients, accessing care may even be more problematic. Telemedicine, often an option for other patients, may not be manageable for those with dementia. Physicians and staff need to reach out to them. Agencies and volunteer groups are available in many communities to assist seniors who need access to technology.4. Staying Home
Because of COVID-19, some of my patients choose to stay home. They’ve decided a medical issue isn’t worth the risk of leaving the house. I also have patients living in facilities who choose to use the care available there instead of going to the hospital.Some Advice
Dementia is a complex medical condition with no cure. But that doesn’t mean nothing can be done to make a patient’s life better, even during COVID-19. With each challenge, there are ways to provide help and support, not just to those with dementia, but for those who care for them.If you know someone with dementia, whether they live at home or in a facility, check in on them. Because in-person visits aren’t the safest option, you can call to see how they’re doing or if you can help. You don’t need the latest technology to connect; many with dementia may have challenges going online. Landlines and cellphones are just fine, allowing your elderly friend to hear a human voice. It does you good too: Building relationships with people who aren’t our age gives us insights and perspectives we may have never considered.
And talk with loved ones about what you would want if you had dementia and couldn’t speak effectively for yourself. Your primary care doctor can help you think through these types of situations. Such conversations are uncomfortable, but necessary.