The parents of four children under 12—three of whom are diagnosed with a rare genetic disorder that could leave them blind in the future—have embarked on a year-long, round-the-world tour to fill their children’s minds with rich visual memories.
Montreal-based couple Edith Lemay and Sebastien Pelletier noticed that their eldest daughter, Mia, began showing signs of vision problems when she was just 3 years old. A few years later, she was diagnosed with retinitis pigmentosa, a condition that causes a loss of vision over time and for which there’s no cure. In 2019, Mia’s two youngest brothers, Colin and Laurent, were diagnosed with the same rare genetic disorder.
