Mom of Boy Born With Snow White Hair and Visual Disability Becomes Children’s Author to Share Her Son’s Story

Mom of Boy Born With Snow White Hair and Visual Disability Becomes Children’s Author to Share Her Son’s Story
(Courtesy of Gemma Stone)
10/14/2023
Updated:
10/14/2023
0:00

The mother of a little boy with a visual disability has turned her son’s story into an inspiring book for kids, with her writing career taking a turn as she has become a children’s book author to spread the message of embracing difference.

Archie Stone was born to parents Gemma and Ash Stone of Wokingham in Berkshire, England, on Oct. 6, 2021, delighting his parents and midwives with his beautiful bright blonde hair. Archie’s siblings, Kai, 12, and Lilly, 7, have the same striking hair color.

When Archie was around 6 weeks old, his parents noticed nystagmus [involuntary rhythmic eye movements]. At just 3 months old, the little boy was diagnosed with ocular albinism, a disorder that causes the pigmentation of the iris to not develop properly, resulting in vision problems, nystagmus, and increased light sensitivity.

“I had to pass my baby to his daddy, as I began trembling with shock,” Ms. Stone told The Epoch Times. “He was visually disabled, he will never drive, and will need help throughout his life.”

Archie Stone was born with snow-white hair and a visual disability. (Courtesy of Gemma Stone)
Archie Stone was born with snow-white hair and a visual disability. (Courtesy of Gemma Stone)
However, as the family of five learned to adapt to Archie’s needs and watched him thrive as a curious, happy toddler, Ms. Stone was inspired to turn his story into a book for children. Writing under the name G. L. Stone, she penned “Herb: The Little Star Who Twinkled Differently,” a tale of a star who one day notices that he’s different. Worried and confused when his light begins to dim, with the help of his father he learns just how bright he is capable of shining.

In a recent interview with The Epoch Times, Ms. Stone revealed that she had started writing this book during the lockdown of 2020 when her eldest son, Kai, received a short story assignment from his English teacher. When Kai struggled to come up with a plot, Ms. Stone decided to “spark his creativity and make the most of his competitive spirit” by suggesting they both write the assignment.

Archie with his siblings. (Courtesy of Gemma Stone)
Archie with his siblings. (Courtesy of Gemma Stone)
She was captivated and couldn’t resist the urge to keep writing. Her third and most recently published book, “Fox and Duck,“ is a story of an unlikely friendship between a fox and a duck who, despite their differences, have formed a heartwarming bond by disregarding the opinions of others. It ”celebrates the power of friendship and acceptance.”

“My goal extends beyond uplifting children with disabilities,” said Ms. Stone, who claims hearing kids talk about her storybook characters “tugs at a chord” she never knew existed within her.

“I’ve cherished receiving messages from around the world,” she said. “They serve as a constant reminder that my message is not only being heard but also deeply appreciated.”

Ms. Stone’s inspiration, Archie, turned 2 years old on Oct. 6. His mom describes him as “an absolute bundle of joy ... on an endless quest to explore the world around him.” She has been teaching him to “discover the world at his own pace,” intervening only when it’s necessary to ensure he is safe.

Ms. Stone's first book, 'Herb.' (Courtesy of Gemma Stone)
Ms. Stone's first book, 'Herb.' (Courtesy of Gemma Stone)

Archie’s morning “ritual” involves him calling out the names of his family members until he has “successfully woken the whole house.” He loves music, painting, and reading with his siblings.

“Archie receives special books from a charity called Living Paintings, dedicated to creating books for the blind,” his mom said. “These books take cherished tales and enhance them with braille text and tactile images, allowing children to truly feel how the characters appear to them.

“It’s become a cherished daily routine for us, and we hold deep appreciation for the wonderful individuals who generously devote their time to include children with visual disabilities.”

Cute, confident Archie who, according to his mother, brought profound transformation when he arrived has even been signed to a talent agency. He’s already modeled for a few brands and auditioned for numerous television opportunities.

Ms. Stone with her latest book, 'Fox and Duck.' (Courtesy of Gemma Stone)
Ms. Stone with her latest book, 'Fox and Duck.' (Courtesy of Gemma Stone)
(Courtesy of Gemma Stone)
(Courtesy of Gemma Stone)

The family shares an exceptionally close bond as Ms. Stone and her husband both grew up in nurturing environments, and their sense of togetherness and love has resonated with their little ones.

The Stones are teaching their kids to follow their dreams and “never give up,” and in her challenging chosen career as an author, Ms. Stone often has to “swallow my own advice.”

The mom of three has just finished her first novel that weaves a captivating tale along with a “hidden message celebrating the beauty of visual differences.”

Ms. Stone hopes to visit more schools to share her stories in different parts of the world. She is launching “Fox and Duck” on Nov. 16 at The New York Public Library and Central Park by hosting a treasure hunt for kids, which culminates in a free signed copy of the book. Additionally, she plans to scatter a few copies of Fox and Duck throughout Central Park, offering the lucky finders a delightful keepsake to enjoy.

(Courtesy of Gemma Stone)
(Courtesy of Gemma Stone)

Through her books, Ms. Stone aims to convey the message that: “Children are in a constant state of learning; their young minds are like sponges, soaking up everything around them. Now, imagine if that sponge soaked up a different narrative about how we should perceive ourselves. The world they grow into would not only be more compassionate toward others, but also more accepting of their own unique selves.

“None of us are drawn perfectly, but we are perfectly different, and that message holds tremendous strength.”

Here are three books that Ms. Stone has penned:
  1. Fox and Duck

She chronicles her life on her Instagram account.
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Louise Chambers is a writer, born and raised in London, England. She covers inspiring news and human interest stories.
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