Baby Ja’bari Gray was born without skin from the neck down, a condition so rare that doctors at his hospital hadn’t seen it before. At first, it seemed like a hopeless situation. Now they are simply hoping to buy some time for the baby while in search of a long-term treatment.
Doctors think baby Ja’bari may be suffering from a rare genetic connective tissue disorder known as epidermolysis bullosa. It will take some time to confirm this from DNA samples taken from the parents. Initially, they were unsure of how to treat it.