Matilda Callaghan, a young girl from England, was born with a rare condition that left her skin covered in a number of polka dots.
Over the years, photos of the child have gone viral, highlighting Sturge-Weber Syndrome, or SWS.
Matilda also cannot walk or talk.
Two weeks later, they diagnosed her with SWS before she was taken to Wigan Hospital to Alder Hey Children’s Hospital in Liverpool due to the severity of her illness.
“We couldn’t travel with her as she was so ill. As we stood watching her being taken away, we didn’t know if we were going to see her again. We'd been so excited at our baby’s arrival, now within a matter of hours we didn’t know whether we would even see her alive again,” her father said.
“We are fundraising to provide her with new chair so that she may continue to do the thing she loves the most, spending time outside,” it says, adding: “Matilda has many conditions she doesn’t walk or talk, she does however manage to cause mayhem and make people smile wherever she goes.”
According to the page, the child’s grandfather recently passed away, and the page was set up in light of that development.
The girl enjoys the countryside where it’s calm, he noted.
He told the publication, “Sometimes you can feel trapped in your own environment, it’s a massive strain on us as a family. We only have Matilda so we don’t know anything different.”
The parents, meanwhile, said she is “is just amazing—we just live every day as a bonus.”
He said, “It is just unfortunate it has happened to us, but there are a lot of people around with SWS, and we want people to know we are always here to help.”
‘Little Angel’
Instead, he added, “I wish they could see past the birthmark and see what a wonderful little angel she is.”He said at time that the girl’s vocabulary is limited to “mummy, ”daddy,“ ”yes,“ and ”no,” and communicates through hand gestures.
But he said she is still happy despite the challenges.
“Despite everything she has been through, she has a smile for everyone. She’s doing fantastically well,” he said.
“We are unbelievably proud of Matilda, she is just amazing–we just live every day as a bonus.”