Three-year-old Ever Hisko suffers from a rare neuro-genetic disorder. One symptom of the disorder causes Ever to sleep only 90 minutes a night—but she remains always cheerful.
When Robin Audette gave birth to Ever, everything seemed normal until they returned home from the hospital. Ever was in pain and had trouble eating. Robin and her husband, Kirk Hisko, later learned Ever had GERD, a severe form of acid reflux.
As Ever grew up, they noticed that she was not developing normally. By the time she was 2 years old, Ever still hadn’t said one word. Doctors diagnosed Ever with Angelman syndrome (AS), a rare genetic disorder that affects the nervous system that is incurable. Although doctors told the couple Ever may never speak, the couple believes she will.
Children with AS have intellectual and developmental disability; some may have seizures and sleep problems. Kids also have a happy, overly excited demeanor and will be smiling and laughing frequently.
For Ever, she normally sleeps 90 minutes every night, which means her parents take shifts to care for her.
Robin hopes for a cure, but not for reasons people may think.
“We think she is amazing and we think she is perfect. Anything that could make it easier for her to be in the world would be amazing,” she said. “However, she is happy, so that’s all I ever want at the end of the day.”
Watch Ever’s story in the video.