Brody’s mom offers insight and resources for parents of children with cleft lip

May 31, 2017 1:59 pm Last Updated: May 31, 2017 1:59 pm

 

Brody William has an incredible mom.

Sara gave birth to Brody on October 7th, 2016. Of course, every mom looks at their child and knows how deep their love is for them and how they are a one-of-a-kind special child.

Little Brody started his entry into this world by giving his mom a whopper of circumstances to deal with. You see, Brody was one of every seven hundred children who is born with a cleft lip/palate. He was also born with a more rare chromosome deletion.

The Mayo Clinic defines cleft lip and cleft palate (CDC) as “openings or splits in the upper lip, the roof of the mouth (palate) or both.” When a baby is still developing inside the womb,  a cleft lip/palette occur when facial structures close fully. Cleft lip/palette is one of the more common birth defects, but are sometimes an inherited genetic trait. They occur usually between fourth and seventh weeks of pregnancy.

Reportedly, Sara was aware of her son’s cleft lip/palate condition before he was born due to an ultrasound. Around 1 in 700 people will be born with this condition, and children who endure this may have problems speaking and feeding, among other issues.

Brody’s cleft lip/palate was detected in his ultrasound. (Source: YouTube/nollygrio)

Brody also has another condition: a rare deletion of chromosome 9. It’s the genetic absence of a specific chromosome that can cause severe inherited irregularities and physical and intellectual disabilities.

Sara is using every resource she can find to help both her son and others with similar conditions. She started a website all about their daily lives and the triumphs and tribulations of parenting. It’s a reality that Sara hopes twill bring more awareness to Brody’s condition and inspire mothers everywhere who may be dealing with a similar diagnosis or issue. As Sara states on her site, “It’s a simple reminder that every smile has a story.”

Brody with his mother and father. (Source: YouTube/nollygrio)

According to their website, his mother, Sara, wrote, “It’s not always easy, in fact, it rarely is (as most mothers can relate). But being his mom has given my life a whole new purpose – I am his voice, his biggest advocate, and his number one fan. Brody, this is for you.”

Brody just gets cuter and cuter. (Instagram/saheller)

The purpose of the family’s website is not only to tell Brody’s story, but to promote cleft lip/palate awareness, with an official statement saying, “This site is a collection of stories of our day-to-day life, from the ultimate highs to the lowest of lows – the reality of parenting. I hope that this blog draws more awareness to Brody’s condition and can inspire mothers from all over the world who may be dealing with a similar issue.”

People are not always understanding over Brody’s condition. According to The Huffington Post, Sara received hurtful comments when she posted pictures of her son on her Instagram account.

“Why is someone judging what a baby looks like?” she said. “They don’t know his story. They didn’t know my story.”

Others have been kinder. Sara also described an event when an anonymous server donated a check worth $1,000 to her with a card reading, “For the beautiful baby!” This money helped pay for Brody’s first surgery to help his lip.

Brody after his first surgery. (Source: YouTube/nollygrio)

Brody’s story has also been featured on Today Show, and Scary Mommy.